Learning Disabilities

A learning disability is a reduced intellectual ability and difficulty with everyday activities – for example household tasks, socialising or managing money – which affects someone for their whole life.

In Surrey there are: 5,700 children with learning disabilities and 2,700 with autism. There are 21,400 adults with learning disabilities and 8,921 with autism. The over 65yr age group makes up 4510 with learning disability and 2014 with autism.

The most recent Learning Disabilities Mortality Review in 2019 shows that when compared to the general population, men and women with learning disabilities die on average 27 years and 22 years earlier, respectively.

They found that some of the deaths were avoidable and there is a bias in care, that leads to health inequalities.

People with learning disabilities have the right to be able to access good quality health care, that acknowledges the persons learning disability and makes reasonable adjustments to the care process accordingly.

Surrey Prescribing Advisory Database (PAD)

The PAD is an innovative resource which can be accessed by healthcare professionals in primary and secondary care and by patients. The PAD provides guidance and key information on medicines use within Surrey. https://surreyccg.res-systems.net/PAD/

NICE

People with learning disabilities

https://www.nice.org.uk/guidance/population-groups/people-with-learning-disabilities

Clinical Knowledge Summaries (CKS)

Learning disabilities https://cks.nice.org.uk/topics/learning-disabilities/

Public Health England

People with learning disabilities in England https://www.gov.uk/government/publications/people-with-learning-disabilities-in-england

Learning Disability Profiles https://fingertips.phe.org.uk/profile/learning-disabilities

RCGP

Health checks for people with learning disabilities toolkit

https://www.rcgp.org.uk/clinical-and-research/resources/toolkits/health-check-toolkit.aspx

Health Education England

Learning disability https://www.hee.nhs.uk/our-work/learning-disability

NHS Digital 

Health and care of people with learning disabilities

https://digital.nhs.uk/data-and-information/data-tools-and-services/data-services/general-practice-data-hub/health-and-care-of-people-with-learning-disabilities

Surrey Health Action - For people with learning disabilities and their supporters

http://www.surreyhealthaction.org/

Includes: Health Action Planning made easy http://www.surreyhealthaction.org/health-action-planning-made-easy

NHS RightCare
Learning disability and autism https://www.england.nhs.uk/learning-disabilities/

NHS MH Implementation Plan https://www.longtermplan.nhs.uk/publication/nhs-mental-health-implementation-plan-2019-20-2023-24/

Other Useful Websites

Surrey County Council: Learning Disability and Autism Information Hub https://www.surreycc.gov.uk/social-care-and-health/adults/disabilities/spb

This is the Surrey Learning Disability Partnership Board and Autism Partnership Board website - use it to find information, meeting minutes, and links to services in Surrey.

Surrey Heartlands CCG: Learning Disabilities https://www.surreyheartlandsccg.nhs.uk/your-health/family-health/learning-disabilities

Mencap: Learning disability explained https://www.mencap.org.uk/learning-disability-explained

Health inequalities https://www.mencap.org.uk/learning-disability-explained/research-and-statistics/health/health-inequalities

Reasonable Adjustments info:

Reasonable adjustments are required by law and form part of the Equalities Act 2010 – they are required to ensure that people with a learning disability are not disadvantaged and services are tailored to meet their needs

  • Flexible appointments
  • Easy read information
  • Appointment reminders via phone
  • Up to date Summary Care Records  
  • Annual health checks
  • Flagging Systems (Summary Care Records)
  • Referral to Primary Care Liaison 

Please see Surrey Training Hub for Disability Health Check Training

#MyGPandMe - Free e-learning for inclusive healthcare https://dimensions-uk.org/get-involved/campaigns/make-gps-accessible-mygpandme/im-a-gp/inclusive-healthcare-elearning/

e-LfH: https://portal.e-lfh.org.uk/

SCIE Social Care Institute for Excellence - e-Learning courses https://www.scie.org.uk/e-learning

GMS Contract Requirements

2020/21 General Medical Services (GMS) contract Quality and Outcomes Framework (QOF) has been updated to include completing AHC for people with learning disabilities during COVID-19:

https://www.england.nhs.uk/coronavirus/wp-content/uploads/sites/52/2020/03/C0713-202021-General-Medical-Services-GMS-contract-Quality-and-Outcomes-Framework-QOF-Guidance.pdf  

Establish, and maintain a learning disability QOF register of patients.

Offer people on the register, aged 14 and over, an Annual  Health Check.  Aim nationally is 75% of your register to have AHC by 2021.

Minimum of 3 staff members to undertake Enhanced Service training and update as required – recommended: one nurse, one GP, practice manager/ admin.

Identify a clinical lead for the practice.

Produce / Contribute to a Health Action Plan.

Payments are made on a quarterly basis of £140.00, the practice must submit their numbers to the CQRS.

Seek support from the PC Liaison Service as required 

Primary Care Liaison Service Document Download

North West Surrey   Tel: 07799 581 566

Guildford and Waverley  Tel: 07557 204 607

Surrey Downs  Tel: 07776 476 432 / 07557 166 663

East Surrey  Tel: 07799 478 806

Acute Liaison Service

For more information, please contact the Acute Liaison Manager on  07774 126 981

SaBP Community LD Team contact and referral form:

CTPLD WEST team

CTPLD EAST team

Outreach Library Service can identify, collate, and summarise evidence for you, to inform your clinical practice, patient pathways and professional development. Library & Knowledge Services

Surrey Joint Transforming Care Plan: Supporting people in Surrey with a learning disability and/or autism who display behaviour that challenges, including those with a mental health condition https://mycouncil.surreycc.gov.uk/documents/s29523/Annex%202_Surrey%20Transforming%20Care%20Plan%20v%20xii.pdf

Surrey Heartlands CCG: LeDeR (Learning Disability) Mortality Review Annual Report Jan – Dec 2019 https://www.surreyheartlandsccg.nhs.uk/documents/documents/about-us/our-publications/leder-annual-report/385-201029-leder-annual-report-2019-syheartlandsccg/file